What is the cost of living with Autism?

On my Google news feed, an article series popped up regarding Autism specialty schools in New Jersey.
This is the latest in the series, but all are linked if you're curious.

The school, named the Garden School, had to fight for state approval just to stay open, and with good reason - it costs $70-80,000 per year, per child for one-on-one ABA-based education. (For those who don't know, Applied Behavioral Analysis is the only study-proven behavioral intervention method for autism spectrum diagnoses, although half a dozen others are well recommended, and are often used in combination, especially when teachers aren't specifically trained in one method).

The article was friendly and had great pictures of the twins they followed, and the school seems to have been successful thus far but I had a shock when I got to the end. One anonymous commenter asked:

"And it costs the taxpayers exactly how much to spend a dozen years to teach one of these children to sweep a floor, or empty a garbage can, or even just to sit still for five minutes?

How many normal students could be put thru medical school for that same money?

Can't p**ss money away fast enough."

So, "blogbat999". Better question: How much does it save the taxpayers to educate these children in basic life skills now, instead of paying for lifelong (70+ years) care? Someone later mentioned that cost of education was "$864,000.00, plus transportation costs." I won't count the transportation costs, because they're a fact of life for everyone with a kid and they're built into any school's budget.

Regardless of the veracity of that number, I guarantee you 12-20 years of early intervention and ABA training will cost you far less than paying for the next 50 years of welfare, disability, and state-run group care homes. This is especially the case in states like PA where Act 62 promises to make regular insurance companies pay for wraparound services (what I do is covered under wraparound). For the money-oriented, that means that taxpayers will no longer be paying so much through MH/MR and state-sponsored insurance for these kids to get the care they need (or that more kids can get the same care as before, with less taxpayer funding per child). Instead, the private insurance companies, which are businesses which have pockets far deeper than our poor state, will pick up the slack and provide a certain amount of care. On the other hand, some families may end up with a co-pay or need to apply for Medicaid to cover the rest; we will see how well things actually work.

Run the numbers any way you like; early intervention and intensive childhood care pay off as a long term investment. This is especially true for less severe cases, where early intervention can lead to a child having a successful job and living outside the home on their own, paying taxes and bills into the system and generally being useful, instead of living with parents on disability pay or being shuffled to a group care home after their parents die - or worse, developing behaviors that can end lives . Ever heard "too little, too late"? It applies to autism very well. The less and later intensive, consistent care is given, the harder it is to change behaviors and make progress. There is no reason for any parent to suffer abuse at the hands of their child, no reason for any child to be hospitalized or jailed (and run up more bills for you loving taxpayers!) when they can be diagnosed early, treated early and improve before they get too big to control.

Note that the commenter, as usual, didn't specify what to do with the kids who are currently going to the school, either. Most of them can not be mainstreamed; they'd be put into special ed classrooms or, if they're lucky, "life skills" classrooms where they'll spend the next 12 years of their academic careers in understaffed classrooms with overworked aides and one teacher (vs the one-on-one the private school can offer), where their progress won't be tracked as cleanly, their needs won't be met as consistently and they'll often be shoved into mainstream classrooms long before they're actually ready, which will strain the special ed room even further as they push aides into the classrooms with these kids to deal with the "problems" that crop up. And do you think the schools, when faced with such an influx of children from these private institutions, will simply sit back and go "ok, we need to re-balance the budget"? In your dreams, guys. More special needs students means more school funding, which comes out of... oh, hey! Your pockets. You're paying for it either way, people.

But of course; it's all about the money NOW. Never mind that an $80,000 investment in your child's future isn't really that much when you consider we pay most sports stars more than that for 30 minutes of play time when some of them have fewer skills than the average autistic kid I work with, and you're paying THAT out of pocket too if you subscribe to cable or FIOS TV, buy tickets to the game, or pay taxes which fund new sports fields. The only difference is that taxes are money we can't choose what to do with; in this case I'd much rather my portion of the state's fat pie go toward education in all its forms than to paying for a new stadium. Wouldn't you?

P.S. I'd also like to note that I find it interesting that this person equates "normal" students with med school (see Temple Grandin, who worked herself through a Ph.D), and thinks it's a fair comparison between a chosen profession and an unasked-for diagnosis, and all the costs that come with each. Please keep in mind that you can churn out all the doctors you want, but until someone finds a "cure" for autism (and I doubt many people would accept a cure anyway), you're still going to have at least 1 in 150 citizens of the United States diagnosed with autism this year (and next, and next... and the numbers keep going up!). Chances are, someone you know already has a child, sibling, or relative with the diagnosis... and they're not getting the support they need because so many of us don't want to "waste" our money. Think about that next time you whine about your taxes. Then go vote for someone who will handle the budget properly, and get your kids the education they so very much deserve.

Watching the Clouds

This is a map of whitecoralbells.blogspot.com as seen by Wordle. It's pretty cool. The link was found on the NaNoWriMo forums, and I'm pretty interested in how it presents blocks of text as visuals. It certainly gives you a good idea of what I blog about on a daily basis, eh? Books, school and kids all come up fairly often! Maybe I ought to toss in a political entry just to mix things up. ;)

Read Animal Farm today (finally). More thoughts on that later, if I find the time. Right now, gotta take the puppy out for play!

An Open Letter to The Richmond High School Rape Witnesses

Dear witnesses,

You disgust me. You really do. The entire news story disgusts me; rape is never ok and no one ever deserves it or asks for it, but the ones I blame even more than the perpetrators of the crime are you: the witnesses.

How could you stand by and let this happen? The news says there were at least ten of you. Ten people, standing or sitting nearby, seeing what was going on... or did you turn your heads? Did you pretend it wasn't happening? Did you watch with that same horrified fascination that presents itself at the scenes of brutal car crashes and burning homes? I understand that group psychology dictates that everyone in the group is predisposed to think that someone else will take responsibility. I was taught that the Kitty Genovese murder was allowed to take place because of a psychological blind spot which allowed every single witness to believe honestly and truly that someone else was calling 911. And knowing that, all of that psychological bullshit still doesn't excuse YOU. Any of you. All of you. You all sat back and waited for someone else to act first. None of you took responsibility and stepped forward.

You must have been scared. You must have been angry or uncomfortable or felt unsafe. But what did you do about it? You waited for someone else to save your asses, and hers. Now you have to live with the sickness that should rightly come with helping something like this happen. You have to go to sleep every night with the knowledge that you failed to stop a beautiful young woman from losing her self, her entire sense of safety within her own body and mind... and that a single word could have made a difference. You have to wake up every morning with a sense of personal failure - and you SHOULD. Every last one of you should learn to take responsibility for yourselves; you need to learn to step forward and speak up for your own safety. You could be next, regardless of your age, sex, or orientation. You could be the victim of another act of senseless violence, and what do you think you will feel like when you see 10 more faces staring at you, silent and watching as the crime takes place?

Think about that next time you walk by one of the rapists, or a fellow witness. Think about it, and feel disgusting, because you are. You are slime, and screaming for more lights, cameras and security fences will never protect you from yourselves. Only taking responsibility for your own safety and using your own voice can keep you safe. Maybe once you've figured out how to stand up and say something, instead of blindly hoping someone else will take care of it, you'll also figure out how to forgive yourselves.

Sincerely,

Faerunner
The blogger who, from now on, is going to make even more of an effort to live responsibly.

Countdown to NaNoWriMo!

National Novel Writing Month is coming!

Join us on a 30-day trip through your own imagination. Leave the dishes undone for a few more hours and get someone else to sort the socks and feed the cat. You know you want to write that novel "some day", and November 1st is the day to sit down and start typing, writing, or dictating your masterpiece. Set the inner editor aside and let the words flow!

Click the image or the link above to visit the NaNoWriMo site and find out what this awesome venture is all about and sign up for yourself. If you do, you'll find me there and in the IRC chat (available on the site or at irc.goodchatting.com #nanowrimo) as MossAngel. Good luck, future Wrimos!

Home Gardening Strikes Again!

In case you're wondering whether your tiny square of grass will make a difference in the way you eat... this is the harvest I got out of my garden this afternoon. Not included: 2+ lbs of beans previously harvested, the rest of the lettuce bed and one potential pea pod. I chose to pull it all in today because two nights ago we got a frost that killed my bean plants and nipped the potato... and we're low on groceries. The carrots, lettuce and (surprisingly) the two pea vines did ok through the frost, although I doubt the peas will flower before the next cold snap.

Here are my garden specs this year:
Planted: Mid-August
Crops sown: Spinach, sugar snap peas, green bush beans, lettuce, chives, carrots, potato (planted later than the rest - found going to seed in a WalMart bag and stuck in a hill on a whim).
Crops harvested: 2+lbs bush beans, loads of lettuce, pan full of baby taters, 5 carrots (plus 3 more too small to pull).
Hours invested: Approx. 10, not counting random runs to grab a bean/lettuce head and pull 3 or 4 weeds. Includes tearing up entire 14x14' back yard, fertilizing, raking, planting, watering, weeding, and current state of winter prep (tilling weeds into soil and mulching, 1/4 done).

Problems I ran into: the seeds I used were just not up to the challenge. Peas took 3 plantings before some came up. Chives and spinach never showed up at all. Carrots sprouted after I had given up on them, and one ended up in the lettuce bed somehow. For 2 year old improperly stored seeds that I just happened to have on hand, the beans and lettuce came up amazingly well and the whimsical potato planting gave at least a fourfold investment in volume compared to the seed tater - not bad for a short growing season! The bean rows did terminate in an anthill, though - something I ignored when I tilled and planted. I learned my lesson and sacrificed two whole plants plus the beans off another one to the ants.

Improvements: Better bed planning (removing the anthill, putting the carrots in the sandy area at the back, etc) and utilization of space. Getting a big washtub to use for compost at the back of the garden. Adding a proper path through the beds, proactive weed removal (mulch!) and more fertilizer! I'd also like to make it look prettier next year with some nicer row markers and plant cages... but that's something to worry about come January. :D

Looking forward to getting things all done for winter, and very glad I "bothered" planting something this year. It may not have been worth the 10 hours of labor in monetary terms, but you couldn't pay me enough to give up the satisfaction of eating my own produce.

Pittsburgh Welcomes the World? Bah.

G20 is starting (has started?) today. El presidente is supposed to be arriving as of a few minutes ago, if I heard right. The news radio stations are a flurry of critiques and snarky comments and Pittsburgh business hates that the entire area around the convention center where G20 meetings will be held is closed off, barricaded and guarded and everyone's lost business and money from the deal. That's not even going into the issues we're having with traffic, what with stopping it on the parkways to let delegates come rolling through the empty streets in their heavily-armored motorcades, half the downtown blocked off and several major throughways being re-routed around the city. It's a nasty mess and honestly, I'm pessimistic about the entire thing, but then I haven't been connected enough to educate myself about what's going on past listening to the radio when I can (10-minute snatches in the car)... so I can't really comment other than to report the unease that everyone else seems to be feeling, and note that the large noisy 'birds' passing by every few hours with binoculars almost certainly aimed at the area below are making me nervous, too.

The mayor has apparently declared a state of emergency as well, the effect of which is to increase police power during the summit and to limit the rights of protesters including the right to open carry a firearm without a carry permit (normally, open carry does not require a permit of any kind - only concealed carry requires the License to Carry Firearms). This means that anyone caught openly carrying a weapon without their LCTF is likely to be hauled away to the jail with the several hundred protesters who have been stuck into cells and the rather upset prisoners rousted from said cells to live in the jail gymnasiums until the summit's over. Did I mention it's a mess down here? But that's politics for ya...

In happier news, I saw two deer yesterday morning while driving to work. Came around the corner of the street that lets out of our little neighborhood, and there they were on the side of the road, looking wide-eyed and utterly confused at the amount of morning traffic, while we stared back at them equally wide-eyed at the closeness of nature. I'm 5 minutes walking distance from a major road through the South Hills and it's amazing to me still that there's a full hillside of grapevine and second-growth forest to block the noise and the exhaust fumes from the houses up here, plus deer, rabbits, groundhogs and other interesting critters wandering the brushy hills.

I think what's kept Pittsburgh green is its lack of flat space. Most cities built near water are on floodplains, from what I've seen; they naturally use every bit of ground available to them. Here where there are cliffs and steep hillsides along the three rivers and where they had to build two incline railways just to move miners and steel workers from their hilltop homes to the industry at the banks, there is still a lot of green space that has been built over, under, and around but not through. It's as though the city isn't so big after all, until you crest a hill and the illusion vanishes in the glitter of a thousand windows staring back at you from the hills. Pittsburgh is a pretty city.

In other news, Mystra the puppy (did I mention we got a lab/retriever/something else mix puppy?) is doing well. She's finally figured out how to bark and we have retaliated by telling her "good speak!" and then shutting her up by handing her a treat and praising her for being quiet. She's picking up on it fast - I hope that by next week she'll know both "speak" and "quiet" to add to sit, lay down, come, potty (only outside - she hasn't had an accident yet today!), and stay (although stay is difficult. Try asking your toddler to sit still some time!). She is also very friendly and our biggest challenge with her is getting her to recognize that not all new people want to have a puppy diving at their legs. She doesn't like to be dragged away from new friends and thinks that everyone loves her!

Lots of fun, lots of running around. My schedule was messed up due to some lack of paperwork last week on the part of the insurance company, but it's back to normal this week and I only lost a few hours so I'm not crying - yet. We'll see how much I have left over after next week's paycheck goes to rent and bills. We haven't turned the gas on since the only thing that uses it is the heat and water heater - pitcher showers with water heated on the stove work pretty well! Honestly, I'm glad we didn't have to pay gas the first few weeks here. It's allowed me to put a little bit more money toward buying things like blinds for the windows. Soon we'll be working on curtains as well! Things are coming together nicely - pictures coming soon!

That's about it - we're using Rick's phone and the tethering service that he's been paying for so that we can connect to the internet at home, but I'm going to make a library run at some point this week to return a few books and pick up some more reading. I'll say one thing - not having 'net at home has really improved my reading habits!

Stuff of Interest

Newsweek has an interesting article about children and race perception, if you have time for a read. It's definitely worth noting that NOT talking about race (or hair color, or gender, or anything else) allows a child to form a bias against those of other races as part of a natural psychological need to categorize people and to form a group in which they feel safe and accepted. Kids gravitate toward those they feel will share their views and opinions (much as adults do) and they are likely to separate each other using the most prominent physical characteristics when they are young, which can lead to a lifetime of unspoken separatist attitudes.

In other news I shot the groundhog (with a BB!) today. He was only nibbling weeds, but I'm not about to let him get cozy in my garden, and Rick thoughtfully left the bb gun by the window. The pudgy critter jumped about a foot in the air when I popped him in the side, and then headed for the shed like the devil was behind him. It made me giggle, but I'm sure it's only a temporary fix. If I could fire the .22 within city limits I'd have aimed for his fat head, but as it is, the BB gun packs a good sting and will make him think twice till I can go digging under the shed and block off his hole.